Wednesday, March 19, 2014

Epilepsy Questions

Recently, I posted on my Facebook page for my friends to ask any question about seizures or epilepsy...."no holds barred". I was surprised at what some people were wondering about. A great group of questions that I would never have considered!

Soon the perspective....will be shared. Until then, here's a look at the questions.

  • What memory does a person have of going through a seizure?
  • What are the physical side effects from these?
  •  Is it painful?
  •  What is it doing to the brain each time it happens?
  •  What is it doing to the brain each time it happens?
  •  How long do they last and does the person know they are having one

  •  What is the best course of action an observer can take to support the person enduring a seizure?
     Does the condition often either lessen or magnify into adulthood? which is more common to happen?

    Will it ever lessen?
    What are the long term effects of the medication? or the seizures should medication not be taken?

  • If a person is known to have seizures, at what point would you still need to call for medical help?

Now, the answers will be based on my experience through Rhett and knowledge from our Neuro team and Epilepsy Calgary. I'm not saying I'm an expert by any means but I do have some knowledge to share. Hopefully it's helpful. 

Saturday, March 1, 2014

March is Purplicious

Purple Day is March 26th. Started by the innovative & adorable Cassidy.
This year we will be doing our part to "Be Like Jelly & Spread Awareness" by posting interviews of others affected by Epilepsy aaaaand sending Purple gifts to friends. 

Want to join in? Either for an interview or a purple gift or both? 
Send me your email! 

Thursday, February 6, 2014


My dear friend has been transferred to ICU today. Hopefully this will be a place of healing for him as he will receive one to one care there.
Say a little prayer for Mr. B, won't you?
He needs special mending.

Wednesday, February 5, 2014

Hospital Visits

It's the annual Radioathon for the Alberta Children's Hospital Foundation. Listening to families' experiences is heart wrenching. Even more so because we have been there, been THAT family in need & staying in the ICU & on Unit 3. We are THAT family whose kids live to visit the hospital. It's old home week for us when we visit or have appointments.

Despite our previous hospital stays and needs, we are blessed beyond belief. Rhett & Warner are both   In good health & we aren't in need of hospital stays.

Today I visited a dear friend in the Foothilks Hospital and was again reminded of how fantastic the Children's is. The FHC is old, with skinny hallways & no storage, low ceilings & does not feel like a place of healing.  Again, we are so blessed.

Again, my heart tore a bit to see a friend hurting in that hospital room. So if you have spare prayer to send out, say one for my friend "B". He could really use it.

Tuesday, January 28, 2014

A Little of This 'n' That.

Beavers Bird Feeder Building

Cubs Enrollment

Cowboy Bup


Monday, December 16, 2013

Sunday, November 3, 2013

...and in other news....

It's Epi-member Folks!
That's right. Bust out your purple attire, put on your brain-face, and raise some Epilepsy Awareness.

Rhett's meds are keeping the Seizure Monsters at bay. Rarely a breakthrough seizure. Yes!

Always, the concern of those monsters stalking him are in the back of our mind. While on the forefront are the effects of those seizures. The delays, the struggles, etc that Rhett works to overcome everyday.

This is why awareness is so important. Overcoming, fitting in, achieving, and showing people that there are reasons making friends, playing with others, and  following directions (to share a mere glimpse) are challenging.

Awareness was shown to me on a different level yesterday by a friend of my sister's. This lady is amazing. I would say her Epilepsy is severe. Her seizures are still uncontrolled and have affected her in many different ways, yet she is the most positive, inspiring, happy person. For example, physical mobility is becoming more limited yet she walked 5k....using a walker....this week. 5k people!!! Woot woot Ms. TO!

....and in other news, there is a bit of venting wanting to burst from my fingers.
Our sweet, "Sheldon-esque" Warner spent a "fun" afternoon at a new friend's. This 3 hr playdate included 3 hrs of playing Halo, and eating ice cream, cheese, crackers, meat and fruit punch.
Gahhh!!!! This is the where the ADHD monster steps in. Shall we liken it to Animal of the Muppets? How about Animal crossed with Sheldon from Big Bang Theory. That's bang on!

If there was a way to provide Warner with a one day effective detox, that would eliminate the extreme reactions those three hours have created, I'm in. If only......