Be a Hero

All our Blue Day for TSC plans have been shelved as the boys and I are ill with a virus.

So a little shout out to our HERO friends who wore blue today for Rhett, took the time to teach their kiddos how to pronounce Tuberous Sclerosis and are doing their part to increase awareness.
xoxo

Tuberous Sclerosis Blue

The blog has been a bit quiet...but that's about to change...and it's not that TS has been forgotten. Goodness no!How could I forget my luvbug Rhett and "The Maybe Disease" he lives with.
 However, I've been posting TS facts on my facebook page, trying that avenue for a change.

Here I return. Home. The blog feels like "home" and I like that.

So....have you done anything to accentuate your TSC Blue?
Read a little?  The TS Alliance...our American friends...have heaps of TS info.
Pinned a little? Pinterest is a wealth of information on many levels...including TS. Woot! Woot!
Lit your home? Your city? Shout out to Calgary and Toronto for turning on a blue light or two. The Langevine bridge and CN Tower are going blue on the 15th.

TSC Blue Langevine Bridge in Calgary.

 Medicine Hat...I shout out to you too. The mayor has declared May 15th as Global TSC Day in Medicine Hat. Woot! Woot!

It's all these "little things", that increase awareness and get people talking. Talking works. Talking means people are sharing...people are learning...and people take notice. That's all it takes. One big chat for a giant step forward.

By the way, stay tuned here....for an exciting Tuberous Sclerosis Surprise on Monday!

PS: I am SO excited! Click here for one little hint.

Blue

Blue is the "signature color" ( read that with a southern accent) of Tuberous Sclerosis.

The Maybe Disease that our Bup lives with.

And May TSC month.

And blue is the Color of Rhett's beautiful eyes....of which one has a tumor close to the centre of the retina, thanks to TSC.....but they are a beautiful blue, filled with mischief and love.

Little Monster

Seizure night tonight.
Just one.
In bed, snuggled up & reading a Berenstain Bears book when that limp arm & hand took over. Not sure why....so it's time to pay a little extra attention.

Hopefully, tonight's "wiggly hand" is just a blip...a subtle reminder.

Monday Madness

Physio this morning for me.

OT this afternoon for Warner.

Yoga right now for Warner.

Um....when does the Schooling take place?
Hopefully, an hour or so will take place tonight after dinner.

What about Rhett today? Well, he enjoyed time outdoors on the trampoline and bike riding, before the flurries set in as well as reading Berenstain Bears with me and is complaining that today is the worst day of his life due to the snow!

Are your Mondays mad?

If you are a homeschooler, do you have a daily schedule you adhere too?

The Visitor

Intense isn't he?

This fellow flew into our back yard and perched on that skinny branch, in the spring snowstorm, beside the trampoline.

A Great Grey? Maybe. Definitely not a Great Horned Owl.

Whomever he is, he is magnificent. Intimidating. Amazing to watch. HUGE. Seriously, he's as big as a Bald Eagle.

Hopefully, he'll be back tomorrow and we can continue our staring contest.

Guess who won?

By the way, Mr.Wise is looking backwards towards the camera. Amazing...wish I had that range of motion....just to keep an eye on my boys!